International Ataxia Awareness Day is on Saturday, but I want this up, before and after Saturday, just in case someone has information to share..Ataxia is a neurological condition that can affect co-ordination, unsteady gait, difficulty balancing, swaying, slurring of speech, involuntary eye movements[nystagmus], difficulty swallowing, and tremors. It even affects their personality when they have an attack. Ataxia is usually caused by damage to the cerebellum or to its inputs and outputs. It could occur due to certain viruses, injury, exposure to chemicals, metabolic disorders or it may have a genetic component.
This is one of my darling granddaughters who is suffering with this problem, Episodic Ataxia. It all started when she was six years old..She had a cold, as did her brother/sister..but she came down with nystagmus/nausea/headache and her balance was off. She has been seen by many doctors and have to admit..Most don't know what to do, since this is really something that is fairly new. My daughter/ her husband keep researching and checking out every piece of information they can. Anyone that knows anything about this type of Ataxia or who they can recommend for advice..please leave a comment.
As you can see from the picture..Christiana is quite the artist. She has been in two Art Shows and we are so proud of her. Some days she can't even sit up. Her dizziness/nausea gets the better of her. Almost every morning she awakes with these problems. Then she will be fine for maybe a week or more, if she is lucky. She is constantly working through this and is still going to school, which may have to change if it gets worse. Especially when there is a flu/sickness going around.
Please keep her in your prayers..
Till next time, keep looking up.
3 comments:
Carolyn, your grand daughter is very2 talented. Please give her an extra hug for me ok..and tks for the information. I don't know much about it but its good information and awareness. Hugs..M
She is beautiful and so talented! I have not heard of this and know it must be such a worry. I will pray for her. xo
It makes me so happy to see her pushing forward and living the way she wants to even though she has been afflicted with this disease. I'd never heard of it until reading this post, thanks for opening my eyes to the difficulties these people must face on a daily basis. Hugs to your granddaughter! And to you ♥
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